Our AGS Community
...the power of one
de Cindy Luxhoj Hahn
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À propos du livre
Caractéristiques et détails
- Catégorie principale: Non lucratif et collect de fonds
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Format choisi: Format paysage, 25×20 cm
# de pages: 22 - Date de publication: août 17, 2008
- Mots-clés Alagille Syndrome, AGS Community, Alagille, AGS
À propos du créateur
The Alagille Syndrome Alliance was founded in 1993 as a support group for individuals and families with Alagille Syndrome (AGS), a rare multi-symptom genetic disorder. Today the Alliance serves over 500 families worldwide. We are growing, striving to extend our reach to more families, educate more health professionals, and participate in research initiatives, and tirelessly working to build a better life for everyone living with the challenges of AGS. Our mission is to be the main networking resource and source of information for people with AGS, their families, friends, and health care providers. We are also dedicated to increasing public awareness of AGS and supporting research efforts on behalf of the AGS Community.